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Beck's Story

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Brave Like Beck Foundation is dedicated to honoring the inspiring journey of Beckham Willett, who was diagnosed at 7 months old with a rare genetic mutation as a type of Mitochondrial disease. An unexpected turn transformed him from a healthy baby into a warrior-- fighting a multi-organ failure genetic disorder, resulting in significant neurological challenges. As one of only 17 known cases globally, Beckham's unique story captured the attention of doctors around the world. In the worst of his days, medical teams told Beckham's parents that he would not make it home from the hospital. Palliative care stepped in to help his family make the most difficult decisions and just when it seemed all odds were against him, Beckham began fighting the strongest fight of his life- literally. Day by day, he started gaining more strength and recovering in ways they didn't think was possible. After 59 days, Beckham defeated all odds and was able to go home.

The journey didn't end there. Beckham's family was faced with new challenges as they navigated having a very medically fragile infant. Through their journey, they found an incredible village of medical professionals, interventionists, and an entire community who came together offering support. Beckham's story has allowed us to connect with families who have fought similar fights, shared their stories of fear and hope, and who have a desperate need for community support. 

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Contact us:

(772) 215-7788

Registered 501(c)3

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